Mom's Ingenuity Helps Daughter with Angelman Syndrome Communicate Needs
A mother's ingenuity is helping her 11-year-old daughter, Juliana, who has Angelman Syndrome (AS), communicate her needs and preferences. Juliana's 'All About Me' card, along with notes and labels, is making a difference in her daily life.
Juliana, like many individuals with AS, is considered nonverbal. However, she is beginning to use her talker to communicate. Her mother has created an 'All About Me' card to help new caregivers learn about Juliana's likes and dislikes, and understand AS better.
The mother's creativity extends to Juliana's lunchbox. After a previous camp mix-up, she started including a note to ensure all food is noticed. This note has evolved over time but remains to help Juliana communicate her hunger and point to additional food. Juliana's mother also had the idea to use adhesive name tags on Juliana's food backpack, which camp counselors appreciated. These labels and notes provide comfort to the author, ensuring Juliana does not go hungry due to communication barriers.
Juliana's mother has found innovative ways to help her daughter communicate her needs and preferences. The 'All About Me' card, notes, and labels are making a positive impact on Juliana's daily life. While Angelman Syndrome News provides news and information about the disease, it does not offer medical advice. Always seek professional medical advice for any medical condition.
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