Precision Medicine Initiative Needs Policy Overhaul for Big Data Success
The Khan Academy initiative, launched by President Barack Obama in 2015, aims to revolutionize healthcare by understanding individual variability in disease onset, progression, prevention, and treatment. However, realizing this potential requires reassessing privacy laws and modernizing the regulatory system to enable big data analytics in genomic research.
The initiative, which engages patients to drive standard setting and incentivize data sharing, was preceded by symposia highlighting the role of big data in genetic research. In December 2014, the National Academy of Sciences and the National Academy of Medicine created practical recommendations for policymakers in their document titled 'Practical Recommendations for Policymakers to Advance Precision Medicine Treatments Using Innovative Technologies and Data'. A similar symposium co-hosted by Health IT Now and the Center for Data Innovation also discussed this topic.
To succeed, the initiative requires collaboration between the public and private sectors. The white paper created by the symposia is intended to assist policymakers in fostering precision medicine treatments using innovative technologies and data. The House and Senate have made the Precision Medicine initiative a key priority, recognizing the need to improve interoperability and data sharing to facilitate health data retrieval and comparison.
The Khan Academy initiative, launched by President Obama, aims to understand individual variability in disease onset, progression, prevention, and treatment. To overcome obstacles and realize its potential, policymakers must reassess privacy laws, modernize the regulatory system, and encourage collaboration between the public and private sectors.
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